House Endometriosis Caucus

On March 5th, 2020 Congresswoman Abby Finkenauer (IA-01) formed the House Endometriosis Caucus to raise awareness and double federal research funding for endometriosis.  Joined by co-chair Congresswoman Jenniffer González-Colón (R-PR), the caucus launched with 28 members.

Original members of the caucus were: Colin Allred (D-TX), Cindy Axne (D-IA), Nanette Barragan (D-CA), Cheri Bustos (D-IL), Joe Cunningham (D-SC), Sharice Davids (D-KS), Rosa DeLauro (D-CT), Antonio Delgado (D-NY), Veronica Escobar (D-TX), Lois Frankel (D-FL), Ruben Gallego (D-AZ), Kendra Horn (D-OK), Chrissy Houlahan (D-PA), Susie Lee (D-NV), Nita Lowey (D-NY), Grace Meng (D-NY), Debbie Mucarsel-Powell (D-FL), Ayanna Pressley (D-MA), Kathleen Rice (D-NY), Mary Gay Scanlon (D-PA), Brad Schneider (D-IL), David Scott (D-GA), Haley Stevens (D-MI), Xochitl Torres Small (D-NM), Lauren Underwood (D-IL), and Marc Veasey (D-TX).

“Working through severe pain is part of life for millions of women all over this country, and it is time we stand up and fight for them,” Congresswoman Finkenauer said. “I am so grateful to have Congresswoman González-Colón and many others join this effort to make sure endometriosis gets the attention and funding that it demands. It is a condition that makes life harder for millions of women all over our country, and we want to make sure women know it is okay to talk about living with endometriosis – it doesn’t make you weak.”

Congresswoman González-Colon said, “There are approximately 50,000 women in Puerto Rico who are currently suffering from endometriosis. Women with this diagnosis frequently experience severe symptoms due to inflammation and pelvic pain, which requires frequent medical attention and at times surgery. Therefore, it is important to highlight the importance of regular medical attention and research. I am proud to serve as Co-Chair of the bipartisan Endometriosis Caucus and partner with colleagues in Congress to be of assistance to women who live with endometriosis. I am confident the Caucus will provide a platform to raise awareness and educate about this condition, while working to find viable solutions and resources to support treatment.”

"Women with endometriosis needed a powerful voice on Capitol Hill, and today they got it! Thank you to the caucus, and thank you, Congresswoman Finkenauer, for sharing your story and becoming that voice. As a doctor, I see firsthand the toll endo takes on my patients: years of misdiagnosis, infertility, loss of overall quality of life, and hysterectomies. Prioritizing research and awareness, which ensures early detection and timely intervention, is key to treating this disease and giving women back the lives they deserve" Tamer Seckin, MD, Co-founder, Endometriosis Foundation of America

"Thank you, Congresswoman Finkenauer and the House Endometriosis Caucus, for taking the lead to increase endometriosis awareness, funding, and research. You are offering hope today to millions of women who have endometriosis.  We are pleased to be working with you towards finding better diagnosis and treatment options - and hopefully, one day a cure!", said Margaret Cianci, Executive Director, Endometriosis Foundation of America. 

“Finally! I’m so excited that this is happening. I along with millions of other women who suffer from Endo have been waiting for someone to hear us in Washington. The fact that this caucus has bi-partisan support is even better, because endometriosis doesn’t discriminate, and neither should we. This illness costs us $78 billion a year. Thank you Congresswoman Finkenauer and all others who have worked on this.”, said Padma Laksmhi - Author & Host/Executive Producer, and Co-Founder of the Endometriosis Foundation of America.

An estimated seven million women in the United States, and about one in ten women worldwide, are living with endometriosis.

According to the Endometriosis Foundation of America, endometriosis occurs when tissue similar to the lining of the uterus, or endometrium, migrates outside of the womb, where the tissue should not be. The result is inflammation, as the tissue responds to the monthly fluctuations of a woman's menstrual cycle. The disease affects an estimated 200 million women worldwide. Currently, there is no known cause of endometriosis, and there is no cure.

  • Endometriosis is the leading cause of hysterectomy in women 30-34 years old
  • Nearly half of all women who experience infertility have symptoms of endometriosis
  • Women suffer for seven to ten years before being diagnosed with endometriosis
  • On average, every week, each woman with endometriosis will lose 6 hours of productivity at work and 5 hours of productivity at home.
  • Endometriosis is estimated to cost the US over $78 Billion each year in medical costs and work productivity. (NOTE: Figure reported was converted to 2019 rates.)

While more common than other diseases, Endometriosis research has historically received a fraction of the research funding.

Join the movement to up endometriosis awareness, funding, and research by adding your voice to the millions of women who are speaking out against this painful, chronic disease. Join Congresswoman Finkenauer in sharing your endo story and stand in solidarity by asking your Congressperson to join the endo Caucus.

Join our movement to up endo awareness, up endo funding, and up endo research. #UpEndo